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Kids took part in a challenging but fun workout in Bedford on Sunday, with every lap and every mile in honor of a young girl who lost her life to a rare disease.

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about-bellasister-1Our daughter Aine was born in November of 2001. She was a little baby, weighing in at 4lbs., 8oz. but she was strong. And beautiful. Her size and her stunning perfect face earned her the nickname “china doll” by the nurses on staff. And she remained strong and beautiful.

Aine filled our lives with sheer joy and happiness.

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about-ainesstoryAine died on August 10, 2010. She was 8 years old. Her death was caused by a disease called Pulmonary Veno Occlusive Disease (PVOD). Although this disease is uncommon, it is imperative that people know about it as it is a cause of Pulmonary Hypertension (PH). PVOD presents medically as PH. It is thought that PVOD might be the culprit behind some cases of Idiopathic Pulmonary Hypertension.

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